Tuesday

Up early again another anxious day ahead. we took park and ride and  a bus to the hospital as parking can be a nightmare. Arrived early as usual  booked in and waited and waited and waited.

nearly 40 mins late I was called in. Well a better day today ,even though they were still confused. I asked what went wrong yesterday and it was explained to me. Its the system .
So today I actually had an Ultrasound and bi op on my lump. Not to painful ,but at least its done now.
Just wait for results Hey Ho

I dont know how Mavis does it. She is much braver than I am.

Thank you  for your  kind posts yesterday. Me and hospitals are not exactly top of my list..

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Monday

After the  Hospital Fiasco  this morning. I was there for  a Scan and a Bi op on my Throat . Well thats what my letter said.. As I said this morning that I was in and out in  less than 5 mins getting an Ultra sound. on my throat All done she said . I said what thats it all done nothing else no needles? She reapeated all done. So after wasting  nearly 4 hours we came home This afternoon  we had to go to the Royal Marsden for Mavis`s scan. I was  sitting  waiting for Mavis to come our from the scan when my phone rang. Hello  This is the Hospital. There was an error  with your appointment . Can you come back in the morning. for  a biop on your throat and groin. So I was due  2 bi ops that wasnt in my letter. You didnt get all the procedure. We can do it  for you in the morning. Strange Ive had to wait weeks untill a specialist was available. But  because they cocked up  I can see him in less than 12 hours notice.

So now its another 4 hours tomorrow. So watch this space for  follow up tomorrow.

Saturday

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What a great couple of days in Guernsey. I hate  flying but it was only an hour. In a prop plane. Paul met us at the airport and we teamed up with Paul and Lee. We bundled in the car and were taken on a tour of half the island. Then a meal in the evening. Bed early well ,11 pm ready for an early breakfast and get ready for Mavis and mine presentations. The both went down well. Then we were treated to another tour of the other half of the island. Then an hours break change for a meal in a nice Chinese. Another late night A taxi booked for 6 am for a 7 am flight. We couldnt sleep worrying. Awake at 3.15 Mavis made tea at 4 am I spent 2 hours pacing. I rang taxi at 5 45. Dont panic he said I will get you to airport in time. and he did.  Plane home to Gatwic was a jet 35 min trip. Buy tkts too victoria on the express ,a quick walk 7 mins wait  for  next train home. anothe taxi and we made it .we finaly got home just before 12 noon.

I had a problem with my power point it would not play a video. My solution was to  purchase office 2016. That sorted it videos play on my laptop.  7 pm off to get louis from kenells. He is asleep now happy to be home bless him. But we have some good memories.

Sunday

Its Marsden day tomorrow. Ive spent hours sorting Powerpoint presentations. Ive found that what works on my Mac doesnt always work on my windows pc. a small video clip works on mac and on windows but only  if  they are saved on 2 different pens. Both  systems are power point 2007 but they are not compatible . after last weeks panic when they couldnt load my macbook pen. I decided on a belt and braces action. have a copy on each. But I could end up with a heap of different pens. I will be on tenter hooks now  going to our next one.

 

Amsterdam

We attended HSE 3.0   20-21 September at The Crown Plaza Schipho Nederlands.

Both Mavis & I were Speakers. What a fantastic few days.

I felt uneasy about talking. There were over 200 Top business men and woman from all over Europe attending. The first day we listened to some high tech talks. I thought they don’t really want to hear my presentation.

So after a restless night with hardly any sleep the second day dawned. Time to check in with the Chairman that we were ready. it was 08.15 I was to be the first  speaker of the day.

The first scare was my memory stick with both our presentations on would not load. Panic welling up. Don’t worry I said I have a back up. Oh  you are good they said. Short lived my back up would not load either. Oh dear  now what they said. I said last chance I have a back up of my back up. If this don’t work cancel me presentation. I could see mavis`s face she was frantic. But wow it loaded. But my nerves were shot to bits. Next it was a meet n greet  20 mins as the room filled up.

The introduction I  got from the Chairman was amazing. So I began my presentation with “ Good morning! After all the excellent speakers yesterday you may find mine today is a bit different“

So after a jerky start with the clicker I quickly settled into it. a couple of hic cups with the slides and I was in full flow I ad lib`d a few times. But when I finished I got  a fantastic round of applause.

Next another  fantastic intro from the chairman for Mavis. She also had problems with the clicker and the rushed to help her. Soon she was in full stride. They loved it.

But  what happened next was a surprise. he asked me to join Mavis they provided 2 chairs and  the chairman called for any questions. Mavis got  a few and I chipped in, But  when no more questions the chairman said  can we have a round of applause for these two remarkable  people. What did the do they gave us a Standing ovation the clapping was overwhelming. It brought a lump to my throat. And as I walked back to my seat. A lady  gave me a tissue  she said wipe your  eyes  I was actually  crying with emotion. I said thank you ,but you need one as well. When we broke later for coffee the chairman said I  bet you don’t know how manny  of the girls have cried with you  today. He said several of them were overcome and couldn’t help a few tears.

And throughout the rest of the day  we were bombarded with lovely  comments. They thanked us and said its what  their  role is all about trying to protect  people like us.

What a fantastic  few days. We will not forget in a long time.

A big Thankyou to  Keith and all the Team who put this venue together.

 

Thursday was Marsden Day

An early start at 5.45 am ready to face what the  M25 throws at us. But we arrive at a tick before 8 am. A hot Latte in the  restaurant before booking in. Bloods done and now sit back waiting for the Doctor. 10.30 ish and we  get the call. Our lovely Doc is his usual self all smiles and a good to see mavis. After all the niceties . He said well  your results are good news you have  14% reduction. OMG thats fantastic news. This is all part of the treadmill of ups and downs of this disease .  Just fantastic..