Thursday was Marsden Day

An early start at 5.45 am ready to face what the  M25 throws at us. But we arrive at a tick before 8 am. A hot Latte in the  restaurant before booking in. Bloods done and now sit back waiting for the Doctor. 10.30 ish and we  get the call. Our lovely Doc is his usual self all smiles and a good to see mavis. After all the niceties . He said well  your results are good news you have  14% reduction. OMG thats fantastic news. This is all part of the treadmill of ups and downs of this disease .  Just fantastic..

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Friday

Mavis and I took advantage of the  weather and spent over a week cutting back all the overgrown garden. We have today  completed the circle we have been right round and cut  down levelled off dug out mulched and put our giant inddustrial  bag full of cuttings  in the skip. I dont think we have done so much in so short a time. Its all done. Knackered.

I think Marsden day yesterday  didnt help. Tomorrow we are out for lunch with her brother for her Birthday.

Life with Mavis is never dull

Tuesday

A strange experience today. It was time for our monthly support group in Canterbury. This time Mavis had arranged  that we should give our presentation as the Speaker. Mavis checked weeks ago that they had a projector and that they had access to it. All we needed was our presentation and a laptop. I had reservations that as this was to be a do it yourself job there could be problems.

It seems the remote for screen and projector were in a cupboard .so with the screen sorted and wi fi password on my laptop. The problems began we could not connect we tried all my cables no good several frantic phone-calls for help resulted in  zilch. Lots of volunteers all trying my leads and swarming over my keyboard. Nothing.

I was persuaded to do my presentation with no power point. So I had my laptop on a table so I could see my presentation as a guide and just talk. I found it hard, but I did it.

Much to my surprise I got a rousing round of applause, They liked it.

Mavis decided to  postpone hers  due to the  IT problems.

Afterwards They came  and asked me questions. I was amazed to find one guy who  came and said he understood every word I said as he was also  an employee of the same shipyard.

Well thats my  day.

 

 

 

Sunday

Home after a smashing break and a chill out camping for almost a week. Good to see Mavis Chilling out. Louis loved  enormous fields to run in.. But was it hot. Biggest problem was a wasp nest  somewhere. But quite a few wont be coming back.

Its good to be home though. Only came home because I have MOT and service on car in the morning.

We have had some lovely  fresh farm food, expensive but worth it.

If the weather holds we may ty it again.

Wednesday

A day of revisiting old memories. Mavis was invited to a photo shoot in Chatham Dockyard. Alec wanted to video  her story. We walked around  the Yard and I was filmed talking about my experience in there. It  woke up  old memories  of 65 years ago, very strange. Mavis gave her  journey  too. I think it went well and that he got what he was looking for. It was a pleasant day over coffee and a bit of lunch. The things I get involved in what is she like.

I  am trying to get a Doctors appointment for tomorrow. If I phone the day before they say  you must ring on the day. Today I rang for tomorrow and they said  full up ,Try in the morning. No wonder people choose to  go straight to A & E.

Tuesday

A nice couple of days in Liverpool. Too Busy to see much of the sights. But  pleasant company. Nice meal out with new friends.

Journey was hectic. Especially  coming home ,we had to  get back to pick Louis up from kennels but we made it.  Every one  is so friendly and helpful.

I have had real problems with my ear. Ive been to  the docs a week ago . Not  to  bothered maybe a Lymph infection. I must get back to  docs  as Its swollen  nearly all day and night and raging earache. Also my breast is swollen. If it gets any  bigger I will need a bra. lol. We are out again tomorrow so  I will see Doc on thursday I can leave it any longer.

Thursday Day One

Today was a day I  hoped would never happen. But!. It has, that’s life.

It was that old routine ie,up at 4.45 am get ready. walk the dog up the lane .Leave home at 5.45 set off to do battle on the M25. 2 and a half hours later we  arrived at the Marsden. First day of new treatment. We knew what lay in store. 8.15 Bloods.

Fit a cannula  ready for the drug. Sit and wait untill 10 am to see  Doctor. Quick check, paperwork  all done. A question and answer session. Then sit and wait for the drug. I fell asleep as usual. At 12 we went to the canteen for lunch. And now back and wait again. We were called in at 12.30,the drug will be ready around 1 pm. It came up at well past 2 pm. We were all done and released at 3 pm. This was the first day of the rest of our future. But we learned a bit. Its not all doom and gloom. Its all positive ,that helps.

WE had an excellent  trip home M25 empty we beat the rush  hour. Louis was pleased to see us. So we only have 25 more drug days. But if that’s what it takes to  keep Mavis going then its worth every minute.

So watch this space.