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Monday

What a hectic few days we had. It started Thursday. I took louis out  early,because we were off to Plymouth for a few days. But  on walking past my Van I could see it had a flat tyre. Rear near side. Now is it coincidence that this is not the first time. i tried  pumping it up and it went up ok. But as soon as I moved the valve it hissed and went down. My suspicions were confirmed the valve had gone. Our  journey was going to be delayed. A call to the AA  was needed. They arrived promptly within half hour. Your valve is split in half he said. Now as the van has been standing since early September with no trouble its odd  that I check it every day and all tyres are up. Then overnighte it suddenly  develops a split valve. After AA man changed my spare wheel it was all in and off to the local garage for a new valve. The guy  that did it was not a happy bunny when I asked him to refit it in the cradle underneath. UNDERNEATH he questioned. Yes please underneath. So  he had to drive the van into the giant empty  garage space. Big enough to get at least 20  buses parked in. his face was red as a post box as he huffed and puffed. But with all that sorted we set off  on the first leg of our weekend . Stopping over at our sons as he was going to dog sit louis for us.

We had a nice evening meal and chatting  . Next morning Friday we got a Taxi to Station for the 3 and a half hour train  ride. We arrived and met Angy in the front of the station so we Taxied back to the Hotel booked in and settled  in for the weekend party.

We went for an evening meal  locally and back to hotel for a few Jars. Up early Saturday for a full English and a walk round the Harbour in the sunshine. On the way I  took some photos keeping my camera in my hand until we got back when I  went to put it in its case I could see I had not  closed it earlier and my spare recharged batteries has fallen out on our walkabout. That would cause a few problems later at the party with not enough power left to  use flash so  what pics i did take were mostly crap. But then i am not David Bailey?

then we had a PRINCESS in  Angys room, If like me you don’t know what a Princess is it’s a UNIT term for a Buffet. Then Off  more Taxis to the party. I think the party went well. Back to the hotel for a nightcap and bed about 1 am. Up early Sunday another full English and then off to the Station for a 3 hour  freezing cold ride to reading A man complained to the guard that there was no heating , who said yes its on but they have the windows open  further up the train. Total Rubbish as none of the windows opened in our carriage and the doors at each end were also closed. Anyway  we got off at reading to meet our son. Outside in the drizzle and cold he was not about. A call  told me he was 20 mins away stuck in Traffic.

Next the fun started. Hello Dad where are you  my daughter in law phoned. Outside the main entrance. So am i but I can’t see you. It turned out she was at the north side and we on south. A bit later ring ring hello dad where are you now. Same place I said. But we can’t see you. Then began a game of what can you see near you.

Next I am talking to a female voice with an Essex accent which confused me but hey ho what is in front of you? Bla Bla Bla. face the building whats on your right ?  and so it went on. Move across the road she said. So  dodging Taxis and busses I walked accross the square. Is that you  in a red coat came the Essex voice. Yes that’s me. Look to your Right we are waving at you. Ah! in the distance high up on the station steps I  see 2 people waving. At last we unite she said I had to ask a lady from the station staff to  direct you. Oh well alls well  that ends well. Wheres the car its a walk from here as nowhere to park. We found the car   Terry was not in a good mood. It’s a mad traffic jam we took 1 and a half hours to travel just over a mile its horrendous and its pouring down. Ok  so are we going Shopping as planned. No we aint he said Oh dear not a happy bunny . So we headed off home. How has Louis been I asked. Then we got the full story. basically louis been excellent no trouble except he does not sleep he walks about all night looking for  you 2. And we hear his nails clatting on our hard floor. Another evening meal and I must confess an early night was in order.

Today we set off for home. The 2 hour Journey was OK we made good time. Now it’s that time to catch up on washing  emails and any odd things.

Tuesday

It was up at 5am and walk louis  up the lane with  a torch. back for  cup of tea  and get ready to leave at 6am. Journey up was OK. Mavis was first  in  at 8.30 for bloods. We thought wow this is good we might get home early. But  No such luck. we sit around scratching our backsides until 10 to 11 to see the Doctor. Another new one. But he was good ,gave mavis a  good  examination. But we were worried that because of her chesty cough they might stop  the drug today. But he was satisfied that it was in the upper area and not congested in the bottom of the lung . so That was a relief. He prescribed some medicine  to  clear out the mucus so that she will feel better. After that we walked down to get a coffee and a bun. Because we now have to wait for Doctor to approve Blood results are good to go.  Then we make our way back to the waiting area. Where we both  fell asleep. But  wow the drug was ready at half one  Great I thought 30 mins infusion 10 min flush we could be on the motorway before 2.20pm. Nope mavis had to have more blood tests , she appeared back  at 2.45. We  got out of the car park just after 3 pm and home at a bit after 4.30,which was early for us. I really missed louis today as we hit the motorway I  called out  LOUIS Daddy is  coming home. Mavis said Silly Sod. I said I am sure he heard me. When we opened the front door he went ballistic running all over the place. He was pleased to see us. My  neighbour called me  as I came back with Louis. I have a parcel for you. We played a guessing game as what it was. Its Mavis Xmas present. But  later when I opened it OH NO. It was not what I ordered. So a quick email to  Amazon to complain. Waiting for reply

Sunday

What a difference a day makes.Thats the title of my book. But its true mavis today looks a 100 times better . Still got  a cough but  not so often.

We had to pop out for a few bits but it was pretty dark and miserable out. Damp and overcast. We havent d one much else. I watched a couple of hours on  chnl 5 about  OCEANS. Interesting.  I cant believe its Monday tomorrow. Dont know where the days go.

Hopefully she will be well over it by Tuesdays Drug Day.

Just another  quiet day today.

Saturday

Wow what night. mave went to bed early because she wasnt to well. After I walked louis at 9 I turned out all the lights   and went to bed. too. Mave was nodding  but the TV was on so i watched both  the TV and her. Well she started coughing wheezing whistling and gasping for air. This went on untill  past 2 am . I couldn’t sleep . Each time I drifted off she would sit up hang out the bed coughing  and gasping for air. The  rumbly and gurgling  noise from her chest was unbelievable. I  began to panic a bit. i sat up  as well but  apart from watch her not much I could do to ease her. I began to  worry  ,was this  cough  turning into something worse.

This is by far the worst I have seen her in 55 years. She is bad. Do I  phone for an ambulance ??? A right dilemma. But  she finally climbed back in bed still coughing. Do you  want a drink I asked No she didn’t. So as she settled back into snoring wheezing gurgling mode I sat up watching her. I remember  the last time I checked the time it was 2:30 am after that I must have dropped off. next thing I was awake to hear her all over again. I got up to  go to the bathroom all thoughts of sleep gone now. But about  20 mins of coughing again she settled back . I  don’t remember much until about 8 am she was up and working on her PC.  How are you  ? Shattered she said. But how is the chest? Not too bad. Now during the morning  we have sporadic coughing fits but  nothing like last night.

I  just hope the worst is over. Keep taking the medicine. Watch this space.

Friday

I’ve tried to keep mavis from doing jobs but even though she is not well She crept in later and put the bloody hoover over.. I just can’t keep her down. I said you should be resting why not go and lay down. No  was all I got. I might get her to go to bed before midnight. The only way to do that is to unplug her pc but that wont be easy.

I took louis for  a short run this afternoon. I said to mave No you stay here I don’t want you outside.Its fresh and it is drizzling.

I see she is taking 5 mins nap after tea .This is the worst I’ve seen her since her diagnosis  back in 2009. I think she picked this up  from the hospital on Tuesday. she was fine until then this came out  late Tuesday evening early Wednesday morning,is it coincidence. We got a copy of the letter sent to  the doctor it  said her water infection is ecoli. Now I ask you where is the best place to get ecoli. Yes In Hospital. Doesnt need a super brain to work out that. I watched the nurse on Tuesday she collected  all the phials and bits together to do a blood test. She picked bits from different trays off a shelf  all handled without gloves. She only put gloves on to actually take the blood. No apron. So different from procedures at the Marsden. Nothing there is touched by hand or without  aprons and gloves.

Thursday

Poor ole Maves not to well today. She caught a cold yesterday or a virus from the hospital the day before. She has a horrific cough,really chesty and congested. WE went up the chemist today for a good strong cough mixture.

She is asleep at the moment whacked out .These colds really worry me,they can soon pull her down and at worst pneumonia can set in and that’s fatal  in meso . I will really have to keep my eye on her.

 

Wednesday

So Tired today. Ive struggled to  keep my eyes open. WE had a short run out with louis this afternoon. he has been shut in  over the past couple of days due to our early stats and long days in London. So we owed him a walk today.

Ive not done much else. been hunting eBay again  done a bit on PC wrapped some christmas pressys posted some letters thats about me.

meso and me

Just what mesothelioma means to me.

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