Wednesday

A1

Found this in my stuff today circa 1955/56. powder blue jacket and blue 7 inch pegs. My tailor said I would never get them on. And If I dared to  walk down the high street  wearing them and come into  his shop he would give me back the money  for them. Well I  struggled pulled and tugged and eventually got them on. Uncomfortably I  walked down town and into  his shop. The  Tailor said OK  stand there. He called out  this guy from the back. Here are those trousers he said. They both had a good laugh. He did refund my money. But  the trousers only lasted a couple more wears  before I had to let them out   but sadly  there was not enough material left to let them out enough. I dont remember what happened to them. Ah those were the days. Shortly after that I moved on to motorbikes. But unknown to me at that time was to be a journey that has  taken me on for 59 years so far. That one is called Mavis. Her parents  called me a Teddy Boy and forbid her to see me.

Tuesday

The penultimate marsden day. Infusion 51. Only one more to go to  finish this 2 year journey. What a journey. Who would have thought  2 years ago that  we would be enjoying this fantastic  event. 7 years  looking  each day in the face . Will  this be the day we get  bad news. Yes we have been there got the T shirt. Never did we dare hope or  think  we would be saying well only one more to go and sitting back  with mesothelioma all gone. A dream. When we were there last Friday Rex, one of the wonderful nurses said they  wanted a new clock as the  one  had become hard to read. So Mavis bought them a new one. But it had to be  a Radio Control clock  to keep  perfect time. So  today  we took it in and gave it to Nella the sister. They  gave Mavis a nice thank you card. It was just a small way  of saying thank you. Rex said Oh  a new clock I thought you were getting a Grandfather clock I said I was but I couldn’t carry it .

Another nice thing  was Nicky was back in her role  as reception. She is such a lovly girl. She lightens up the whole place with her smile. We chatted for ages. Such a welcome sight.

We were saying we are glad that this hectic long tiring day  every 14 days is coming to an end  that is good. But we will miss all those lovely nurses and doctors. They have been so close  ,more like family and friends.

But that’s  the price we pay for Mavis,s new meso free  life. I certainly will not mis getting up at the un godly hour before 5 am in the cold dark winter mornings, walking louis up the lane in the frost with a torch dodging the cars. That 2 hour plus nightmare  journey on the country’s largest car park the dreaded M25.Sitting half awake all day in the waiting room. What I will miss though is our trip to the yew tree for a tea and a coffee and my favorite  Belgium Bun.  I shouldn’t  have the bun but what the hell I  must have something for my journey. If I get to the counter and  see no buns its like withdrawal symptoms. over the 2 years I must have had at least 45  Belgium Buns. Hm! I can smell em now.

Well  its only 9.30 pm but I am shattered and off to my bed.

Thursday

4 days in iMIG The worlds largest mesothelioma Conference. This year 9 was the largest ever so far. iMIG means International Mesothelioma Interest Group

Wow! What a powerful  4 Days. We  put louis in kennels and travelled to Birmingham. Journey up was not  brilliant. Started out with taxi to station went to wrong address . Then Train had bus service which  took 1 1/2 hrs  to do what the train would do in 6 mins or so. But  we  arrived around 4.30 ish booked into hotel. Then made our way to the Birmingham ICC. We crept  quietly into  the Nurses conference. And so the next few days began. WE went  to so many  conference talks, Ive lost count. And to be honest most  were so  scientific I didnt understand much.

We were fed and watered well  each day. WE had an evening gala Dinner. Not impressed. Event was nice food ????.

But the most  gob smacking  thing  during all 4 days was the amount  of people from around the world who just  wanted to meet Mavis. I am stunned. I knew she was popular in the meso world but I never  knew it was so much by so many.             Doctors . Professors  ,the media , nurses and so many general people. Most of the time I  just  stepped back out  the way and simply watched in total awe and admiration.

My arm was twisted before we went  to make a speech. Well I  did a 6 minute one which was on How mesothelioma impacted on me. Oh dear was I shocked. So many people stopped me to thank me for  such a moving talk. So many  were in tears. It was just my thoughts and a brief  account of my journey over the past 7 years. Unfortunately It was not videoed. But if anyone is interested I can put a copy on here.

But soon the  time was ready  for the last session on Wednesday and it concluded with presentations to all the people who had worked so hard to  bring it off. And finally they asked Mavis on to the stage to do a short  one to one interview  to bring the whole event to a close. Its on  our website and on youtube                   https://www.youtube.com/watch?v=5u8prE3QejM

I am so unbelievably proud of Mavis she has achieved so much despite having being so Ill .

God bless you I love you so much.

Friday

Ive been trying to revert back to this old version for ages. But just what I did today for this to pop up I dont know. I dont like the new version. I wish these sites would ask if you want to  change instead of just doing it.

Wednesday

It was MOT day for my motorhome. As he handed me back the keys  I said  every thing Ok. Not quite he said. Its failed I am afraid.. On what?  one Fog light out and one front overhead  light out One side lamp out and one rear near side out.

I  was about to ask if I could leave it  to get it fixed when he said do you want me to have a look . Yes please. 15 minutes later he was printing off my pass certificate. He changed all the dodgy bulbs. I have one advisory  track rod covers split.

Soo not such bad news. They cant fit  me in again for at least 3 weeks.

Tuesday

We have had it all today. From  bitter cold winds Heavy rain and lots of it. Even some snow showers . Mixed in with all that Bright  blue skyes and Sunshine.

Well  after a few more emails back and forward to Haven Holiday management  a bit of  duck shoving  . They are now going to look into our complaint.

I dont hold out a lot of hope that it will be sorted in my favor. But at least they had an ear bashing.

I sit back now and wonder where this country has gone in the last decade. We are constantly shown  the bad side of our  government . Walk outs strikes by Doctors . Trains . Major High Street  stores  Going broke. So many  on the fiddle. Millions out of work. Children unable to go to school near their homes. Where will it all end. Great Britain Hm! I dont think so any more. Ok we dont have flogging in the street and hanging. But Hey whats next. The EU ordering us about like naughty  kids. i suppose when  we are all  on the euro  and no longer  Britain but the 50th state of  EU. WE may wake up. But then it will be tooo Late.

DSC00036

Wow what a weekend we had at Allhallows with the mesowarriors .

Its always good to meet up again.  Friday evening we  made our way  to the entertainment centre looking for  food. . Oh dear  food closes at 9pm we were too late. So next stop was a pizza bar. I dont eat pizza so I had BOBS Bowl . I thought it was  chicken legs chicken nuggets and wedges wit  sauces. We carried it  into the entertainment  hall. The  Group  was playing  Bedlam  so bloody loud . But I did my usual trick. Whip out my  hearing aids. Stuff a big ball of wet tisue in left ear. Noise what noise. I am  totally deaf in right ear so I dont hear the band..  Angy was called up on the stage to  do  family fortune quiz show. . When I was clearing the  rubbish away It dawned on me I had only 2 packs of food  should have been 3. No wedges. But it was too late now I had no proof. . Next day when  noise levels were  normal it turned out that  several of us were cheated on our orders. Some got it sorted straight away..

We decided  that we would hold a party. Tracy and Angy were driven into town by Dianne to get  some food. Mavis said Get what ever you see and get  drinks and just give me the bill its my way of saying thanks for  what you did for me in London. So 6 pm  we all made our way to Tracys van and we spent the entire evening  eating drinking and having a laugh.

Sunday Mavis and I decided to  go  down and get a  breakfast We met Dianne and  after  breakfast  we went back to Angys van because  we were soon to say  our goodbyes. They all had a long journey home. This time for us it was only about an hours drive home.

Another successful weekend .